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littlekiwi

Perfect just as you are

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Even if I could turn back time and change what happened on July 10th, 1987, I would not. Being born with a frontal nasal encephalocele and no bridge to my nose may have been a challenge growing up with all the major surgery I had during my first 15 years of life, but it has built me up to be a strong independent woman with a fight that I may not have had if I was born without flaws. I have always faced life with a positive mind set and the view of what can I do rather than what can I not do. Sure because of medical technology in the 80’s and 90’s I may not have all the answers as to whether the facial disfigurement caused other issues down the track such as my eyesight or other more complex medical issues, but I have faced them all head on and its only helped me build a tough determined exterior. I may have had more surgeries and have more scars than I care to count but each one just shows how determined I was growing up. I often wonder had I grown up ‘normally’, would I have had the same opportunities, learning experiences, or landed in a profession where I so heavily rely on lived experience of health and disability issues. By being born with a difference, I would like to think I view people on their character and how they are as people rather than how they look.


If you’d like to read more about encephalocele here is a web page (warning there are a few somewhat graphic photos) https://www.cdc.gov/ncbddd/birthdefects/encephalocele.html The photos on the website show the protrusion at the back, mine was in the front


Me time by Designs by Soco
Flaws and All by Pink Reptile Designs
Storyteller May 2020 by Just Jaimee
Bloom & Grow by The Lilypad (Gesso layered on top of purple paper - they are two separate elements)
Rituals blog hop by Kim Jensen (Bow)
Feeling Good by Little Butterfly Wings (Tag)
Thanks for sharing your story and linking us up to more info about encephalocele. I love the cute photo of you and how the background papers match your sweater :heartlub
 
What a beautiful page, Jennifer! I love the sweet photo, and the pieces you've chosen to scrap it with show it off beautifully! The awesome attitude reflected in your journaling is inspiring! Thanks for sharing the information and your thoughts about your experience. :-)
 
@KimJ at this point nearly 34 years down the track being anything but positive won’t get me anywhere. I’ve potentially still got some surgeries to go but as they aren’t medically necessary and I’ve been waiting since I was 15 to have them I’ve decided to live my life....if I set aside 18 months (3 surgeries with 4-6 months of recovery) of my life every time I got told surgery should be within the next 12 months I’d never get to live my life. It’s the major disadvantage of a public health system where your surgeons retire totally or just do private practice or who are busy with younger patients and more critical burn victims
 
This turned out fabulous! I love how you layered the purple page with the gesso. The word art is gorgeous, and your journaling is so sweet! The flower totally works with the greenery!
 
I love that picture of you! Brought a smile to my face! And like Sheri, I too like the color matching....makes for a cohesive, visually pleasing layout.
 
Jennifer, I absolutely love this. Thank you for sharing your story and history. Your page perfectly highlights that adorable photo and your journaling!
 
This is a wonderful start to the MOC. I love your photo and the journalling. You are truly an inspiration.
 

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Month of Challenges 9
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littlekiwi
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mocday1-perfectjustasyouare.jpg
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