- Joined
- May 7, 2012
- Messages
- 22,332
Some of you already know as I posted on Facebook last week, Thank YOU so so much to you all who have posted there and the ones of you who have gotten in touch privately too, you mean the world to us!!!!
For you who don;'t know: I haven't been around as (long story short) they are changing the system for the disability well fare. Even though I was assessed thoroughly last year, they made me go through the whole thing again, including a face to face interview.
When the benefit was given to me, in 1996, I was working as a health Advocate for University College of London Hospitals and all the clinics and health centers and other hospitals for the area's NHS Trust,plus had started doing a lot of work for Immigration & was being trained for a spacial op team (for Immigration raids) , had given birth to Sarita two month prior to the interview but was back at work part time, They allocated this benefit/allowance it FOR LIFE, higher rate, and it was a doctor, an MD, who did the interview.
This time, it was a physio therapist, no offense to physios but this girl was just trying to break down my body in parts for the treatment answers, trying to tick the boxes in the computer form in front of her
They wrote to me last week saying they are lowering me to the standard (middle) rate, which means I will loose my car, which is given to us through a charity called Motability, is a lease for 3 years that gets paid directly from the allowance and we don;t pay insurance for 2 people, no road tax, no MOTs/service/ in other words, I pay for the petrol and washing the car, but you only qualify if you are on the higher rate
I got so terribly upset because also just a week prior to that and 5 days prior to that week I had had a total failure with supermarket deliveries (2 different ones, exhausting dumb people on customer services!!!) but Sarita stepped in (and for this I have been praying in gratefulness each and every day since!!!!!) she wrote the letter, got in touch with every professional that treats me (these are LOTS!!!!!) and got us appointments apart from my usual, so we could ask for letters of support.
That is why I haven't been around.
So far, we are doing great, as every professional got so upset that the agency who is screening did this to me and are more than willing (and doing it already) not only to write the letter of support but also to complain. There are a few people left to speak to, then we will send the letters all together and wait for a positive reply.
So, if possible, if you could remember us and add to your prayers, or your thoughts even if just a fraction of a minute, we will both (Sarita & myself) be eternally grateful.
Many of you who know me a bit better know how important my Pad's family is to us, and knowing I have you in heart with us in this battle helps so so much...
So, I'm feeling better in spirit, even though exhausted & in a LOT of pain as we have been from clinic to clinic almost all week, but missing you LOTS and trying to get this letter sent latest next Wednesday, together with all supporting ones, and therefore be able to scrap and come hang around with you guys. I will try be around as much as possible this weekend as I last week posted our new August 2017 M3 CT Challenge and haven't looked in since, plus just posted earlier the Focus Weekly Challenge for today!!!!!!! one of my most favorites subjects which is Family History and can't wait to see what you guys come up with!!!!!
Also remember we have a chat next week Tuesday!!!!
Krista who is the most amazing at keeping me without forgetting has already made a post HERE- but I will be reminding you as much as possible!!!!
Thank you so so much for the ones already in the know, and to you all in advance.
Super huge huge huggzzzz
For you who don;'t know: I haven't been around as (long story short) they are changing the system for the disability well fare. Even though I was assessed thoroughly last year, they made me go through the whole thing again, including a face to face interview.
When the benefit was given to me, in 1996, I was working as a health Advocate for University College of London Hospitals and all the clinics and health centers and other hospitals for the area's NHS Trust,plus had started doing a lot of work for Immigration & was being trained for a spacial op team (for Immigration raids) , had given birth to Sarita two month prior to the interview but was back at work part time, They allocated this benefit/allowance it FOR LIFE, higher rate, and it was a doctor, an MD, who did the interview.
This time, it was a physio therapist, no offense to physios but this girl was just trying to break down my body in parts for the treatment answers, trying to tick the boxes in the computer form in front of her
They wrote to me last week saying they are lowering me to the standard (middle) rate, which means I will loose my car, which is given to us through a charity called Motability, is a lease for 3 years that gets paid directly from the allowance and we don;t pay insurance for 2 people, no road tax, no MOTs/service/ in other words, I pay for the petrol and washing the car, but you only qualify if you are on the higher rate
I got so terribly upset because also just a week prior to that and 5 days prior to that week I had had a total failure with supermarket deliveries (2 different ones, exhausting dumb people on customer services!!!) but Sarita stepped in (and for this I have been praying in gratefulness each and every day since!!!!!) she wrote the letter, got in touch with every professional that treats me (these are LOTS!!!!!) and got us appointments apart from my usual, so we could ask for letters of support.
That is why I haven't been around.
So far, we are doing great, as every professional got so upset that the agency who is screening did this to me and are more than willing (and doing it already) not only to write the letter of support but also to complain. There are a few people left to speak to, then we will send the letters all together and wait for a positive reply.
So, if possible, if you could remember us and add to your prayers, or your thoughts even if just a fraction of a minute, we will both (Sarita & myself) be eternally grateful.
Many of you who know me a bit better know how important my Pad's family is to us, and knowing I have you in heart with us in this battle helps so so much...
So, I'm feeling better in spirit, even though exhausted & in a LOT of pain as we have been from clinic to clinic almost all week, but missing you LOTS and trying to get this letter sent latest next Wednesday, together with all supporting ones, and therefore be able to scrap and come hang around with you guys. I will try be around as much as possible this weekend as I last week posted our new August 2017 M3 CT Challenge and haven't looked in since, plus just posted earlier the Focus Weekly Challenge for today!!!!!!! one of my most favorites subjects which is Family History and can't wait to see what you guys come up with!!!!!
Also remember we have a chat next week Tuesday!!!!
Krista who is the most amazing at keeping me without forgetting has already made a post HERE- but I will be reminding you as much as possible!!!!
Thank you so so much for the ones already in the know, and to you all in advance.
Super huge huge huggzzzz
