The last few months have been quite hard and stressful. Ever since July, Vlad has complained that he feels a bit bad, with stomach pains, nausea and weakness, dizziness. We did some tests on him, which showed that he is very anemic and that he has low hemoglobin. We panicked and went to the enterologist. Months passed with emotions and fears, in which we made countless trips to the doctor, countless tests and analyses. The final diagnosis is Crohn's, an autoimmune disease. He started the treatment two weeks ago, an injection that he will give himself, every two weeks, for the rest of his life, or until they will find some miraculous cure. It's good as it's not a worse kind of illness. It's true that he will have to completely change his lifestyle, he will no longer be allowed to eat many things he likes. It will take some time before he adapts, but he has a chance to live an almost normal life.
I'm so sorry he (and you) are going through this - i have siblings with crohn's (they were diagnosed around their early 20's, about the time i had my kids) and they are both quite different in how it effects them and have both had different experiences and treatments - it is definitely a rollercoaster and a lot to learn about. my sister has injections (they definitely improved her results and she's back to running etc) where my brother is basically in remission for the last few years now, it is so variable between patients and hard to predict, so i really want to offer you hope because it can feel quite dark at the beginning, especially when you have already felt so sick for so long (because the path to diagnosis like you described can be so long and hard to begin with). [[Hugs]]
It's a process, and one that is ongoing. My DH has been diagnosed with Crohn's since approx. 2008. It was over a year of unknowns, surgery to remove dead intestines, lots of tests, experimental drugs that put us in debt, and then all the time he felt horribly bad. It was a long process. Draining. Once he was diagnosed, things did slowly get better. Having that diagnosis helped. He has flare ups from too much grease/oil, too much beer, and also randomly. He also takes the injections every couple of weeks - thank goodness for insurance. Please reach out if you have any questions or need a digital hug. Many hugs and hopeful healings for you all!
@bellbird , I am so sorry to hear about your sibling having Crohn, but I am glad that the treatment is helping them. It seams that since he is having his treatment, Vlad is much better, the blood analysis shows some improvement, he has more energy, but, the injections weaken his immune system... so every little thing is becoming a big thing. Just before New Year's Eave we discover that he has an infection on the leg, probably from a small scratch or something and we ended in the hospital where they made a small cut to remove the infection...And, of course, it's still hard for him to give up the fast food, and all the little thing that kids love, so we have interminable talks and arguments about it.
@jk703 , yes, it's a process, one that will take some time to use to it. At least we know what it is, because I heard a lot of stories about how hard others discovered the diagnosis and they went through a lot of things. We were lucky to find a doctor that figured it out pretty soon, and that she made everything to start the treatment as soon as possible. Now we have to get use to have this in our lives, and adapt. Thank you for your words and support!
@Roxana yes the immune function issues with catching colds & infections and how they are more serious add to the complex and frustrating nature of Crohn's. I'm sorry he's already finding that with his leg wound. I'm glad you sound like you have a good doctor & the results are already improving but changing diet is mentally hard for anyone (& their family when you are cooking for them)but it really can make a huge difference. I'm sure he'll start to see connections between certain foods he eats and how he feels a few hours later if he starts keeping track of it even with the medication
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