- Joined
- May 7, 2012
- Messages
- 22,332
....or at least as brief as my Latina talkative heart allows 
and an apology, especially to all of you awesome people who played the 10 Days TN Challenge-
A HUGE thank you to each and everyone of you who saw me disappearing and messaged me here & on Facebook, emailed and have been as supportive as my blood family are....
so I thought I explained to everyone in one go.
On Monday last week (23rd July) I finally went for the Nephrology Clinic(kidneys/renal vascular) appointment I should have been given almost 2 years ago, when they first found out about the Heart Failure.
Because of hospital's mess up, I ended up not seeing anyone, even though myself and my GP kept hustling them.
There is also a lomg story about last Monday (they cancelled the clinic after half hour of us sitting there, I called out I used to be a Health Advocate for the Hospitals (UCLH- University College of London Hospitals) and the whole area trust, and that I would go on with legal proceedings....so they found someone, a lady who happens to be the head of Renal system, for the UCLH-
What I was told is that I am in a very critical point, half way down the path to kidney failure-
That means dialysis or transplant or death unless I make some HUGE changes and more medication, which I am already taking an enormous amount
I wont go for dialysis for many reasons, and I doubt I qualify for transplant right now.
I kind of broke down as the steps to follow are going to be extremely difficult.
Many of you already know I am 90% of my time bed bound,I have chronic pain after a hip replacement gone wrong and 4 operations trying to fix it failed, many other physical impairments, main right now being the Heart Failure and a neurological problem.
I didn't have energy to do anything (for those of you who know me, I didn't want to scrap, meaning it was bad, really bad) and got stuck in a very negative place.
Luckily I have my families, the blood one, the 40 years of friendships one, the scrappers I have met and many, many of you here whom I have not yet met, we probably wont meet but you are in my heart and mind, sometimes higher up than some of my blood relatives.
Thanks to my families, the patience (you need to be REALLY patient with me when I am low, am stubborn and loud) the understanding, the listening and empathy, I'm today in a much better frame of mind and trying my very best.
A HUGE huge THANK YOU to all of you, especially many people who get together for the chats, even if we don't talk further than the gallery comments or chats, this, The Lilypad's family has become one my stronger supports ever, for 5 years now.
To Laura @lmccandless & Julie @mrs2a50 for the patience and support, to all Pollys and designers, to so many of you who have messaged and taken an interest every time I had health trouble but last week especially, some of you who are close to us or have given spiritual support and advice (some of you know my Faith isn't always as strong and have been there for me many times)
and also especially to @jenn mccabe who got the worse end that Monday and took all the time to talk to me and encourage and support and carried all the doing for looking after the Challenge, Krista @norton94 & Christa @cfile Jenn @jk703, all of you have been now for many years my rock, my shoulder to cry and my hug to celebrate.
I would love to thank everyone individually but here I'm bound to forget someone, so, if I haven't replied to you yet, bear with me, I'll get there
Some people think I exaggerate, but, once again, the dimension all of you have in my heart ...I don't think the word has been invented.
And now I better go or you will be asleep in no time
Please, do keep us in your prayers or thoughts.
and an apology, especially to all of you awesome people who played the 10 Days TN Challenge-
A HUGE thank you to each and everyone of you who saw me disappearing and messaged me here & on Facebook, emailed and have been as supportive as my blood family are....
so I thought I explained to everyone in one go.
On Monday last week (23rd July) I finally went for the Nephrology Clinic(kidneys/renal vascular) appointment I should have been given almost 2 years ago, when they first found out about the Heart Failure.
Because of hospital's mess up, I ended up not seeing anyone, even though myself and my GP kept hustling them.
There is also a lomg story about last Monday (they cancelled the clinic after half hour of us sitting there, I called out I used to be a Health Advocate for the Hospitals (UCLH- University College of London Hospitals) and the whole area trust, and that I would go on with legal proceedings....so they found someone, a lady who happens to be the head of Renal system, for the UCLH-
What I was told is that I am in a very critical point, half way down the path to kidney failure-
That means dialysis or transplant or death unless I make some HUGE changes and more medication, which I am already taking an enormous amount
I wont go for dialysis for many reasons, and I doubt I qualify for transplant right now.
I kind of broke down as the steps to follow are going to be extremely difficult.
Many of you already know I am 90% of my time bed bound,I have chronic pain after a hip replacement gone wrong and 4 operations trying to fix it failed, many other physical impairments, main right now being the Heart Failure and a neurological problem.
I didn't have energy to do anything (for those of you who know me, I didn't want to scrap, meaning it was bad, really bad) and got stuck in a very negative place.
Luckily I have my families, the blood one, the 40 years of friendships one, the scrappers I have met and many, many of you here whom I have not yet met, we probably wont meet but you are in my heart and mind, sometimes higher up than some of my blood relatives.
Thanks to my families, the patience (you need to be REALLY patient with me when I am low, am stubborn and loud) the understanding, the listening and empathy, I'm today in a much better frame of mind and trying my very best.
A HUGE huge THANK YOU to all of you, especially many people who get together for the chats, even if we don't talk further than the gallery comments or chats, this, The Lilypad's family has become one my stronger supports ever, for 5 years now.
To Laura @lmccandless & Julie @mrs2a50 for the patience and support, to all Pollys and designers, to so many of you who have messaged and taken an interest every time I had health trouble but last week especially, some of you who are close to us or have given spiritual support and advice (some of you know my Faith isn't always as strong and have been there for me many times)
and also especially to @jenn mccabe who got the worse end that Monday and took all the time to talk to me and encourage and support and carried all the doing for looking after the Challenge, Krista @norton94 & Christa @cfile Jenn @jk703, all of you have been now for many years my rock, my shoulder to cry and my hug to celebrate.
I would love to thank everyone individually but here I'm bound to forget someone, so, if I haven't replied to you yet, bear with me, I'll get there
Some people think I exaggerate, but, once again, the dimension all of you have in my heart ...I don't think the word has been invented.
And now I better go or you will be asleep in no time
Please, do keep us in your prayers or thoughts.
