What's new
tinkerbell1112

TLP 2025 Summer Camp - Hiking

Description
I used an old TLP Collab - but in the spirit of current designers, I only used items from designers in the shop now: Amy Wolff, Kristin Aagard, Grace in Color, NBK Designs, and Little Butterfly Wings.

Because the journaling is what meets the challenge parameters, here it is easier to read:
My mobility has declined over the past 5 years. I went from not even remembering some days I had MS, to having it slapped in my face. It hurt to walk; it hurt to stand. The fatigue was killing me. I went from being the power walker in the front of my family to being the slowest of the group.

I began with an old cane I used when pregnant with Ada and bought at the pharmacy. I hated using it in public. It was ugly; it screamed "problem". Then I bought a foldable cane and put a Mickey sticker on it. That helped. But it was still weird. I booked scooters at Disney to help with the long days. I was embarrassed. I let people convince me I could leave the scooter at the hotel because it was inconvenient to bring it with to the place we were going.

Then I found my fun canes! I slowly started accepting it and actually used the canes - not only for longer days like college tours, but for short trips into the store. Any time I was going to be on my feet for longer than about 15-20 minutes, and not have a cart or something to hold onto, I used it.

Then, I decided I didn't want to rent scooters anymore, and hated the inconvenience of them - though I thought in the back of my mind that one day I might buy my own. Instead, I bought myself a rollator. It helped. Trips to the museum, where it was more standing than walking was amazing with this new device that allowed me to sit down when needed. It helped on voting days; it helped on college tours; it helped on cruise ships. It was my new walking/standing lifesaver. But, it still didn't help me with the fatigue on longer days on vacations.

Enter my new 3-in-1 device! It can be used as a rollator, a push wheelchair, and an electric wheelchair! I've only used it twice, but what a difference! I was able to come home from a three day trip to Universal and I didn't spend the next two days in bed recovering from the fatigue! I have gone from being embarrassed and feeling like an inconvenience for needing to have a bit of assistance, to accepting it, buying what I want, and thinking to myself that those that think it's inconvenient or embarrassing are the issue - not me! Yes, I look normal. Yes, I look like I am not disabled. But I am. Recently I heard a talk about disability and it was described in a way that blew me away. I'd never really thought about it in this way. The person said that a disability doesn't mean that someone can't do something - it means that it takes them longer to do something. So yes, I can walk across a college campus on a tour - but it is going to take me longer than the "normal" person and it means I need assistance to do it. I loved the way it was described, and it has helped me accept the term "disabled". I now use the tools I need to keep up in a world where I would be left behind without them.
  • Like
Reactions: Lara and KarenB
Amazing page JLynn and great journaling.. Your photos surrounding the journaling is fantastic composition, and I applaud you for accepting and making a statement to your self that you will not let the disability define you, but enhance the everydays.. You are amazing, and so glad you found the 3 in 1 device so you can enjoy without the suffering later. Beautiful page and beautiful scrapping. TFS!
 
I loved reading about your journey and glad you have found some assistance that fits for you right now. Great journaling and mix of photos.
 
I'm so glad you found something comfortable that works for you and your documenting is so lovely here, thank you for sharing it with us and all this beautiful photos of you!
 

Media information

Media category
Summer Camp 2025
Added by
tinkerbell1112
Date added
View count
82
Comment count
4
Rating
0.00 star(s) 0 ratings

Image metadata

Filename
TLP 2025 Summer Camp - Hiking .jpg
File size
199.8 KB
Dimensions
800px x 800px

Share this media

Back
Top