Well everything changes…..

Hopefully for the better very soon. Been dealing with some pretty horrible body issues that I wouldn’t wish on anyone. I’ve actually suspected it for an number of years (but doctors at hospital fobbed me off saying my symptoms didn’t match up to “normal” symptoms etc so I dropped the thought) but after two particularly bad episodes of gastroenteritis type symptoms (it’s not gastro though) this week plus worsening fatigue, brain fog etc for the past few months, enough was enough. After a bit of discussion with the nurse at my doctors practice I’ve finally got forms for lab work up for Coeliac disease which I’ll be completing this afternoon. Now I don’t think it’s full blown coeliac but at least a gluten intolerance of some kind (I certainly wouldn’t be surprised given I’m already lactose and garlic intolerant).

Let’s hope I get relief very soon as this has been my reality for too long with these thoughts passing through my head quite a bit. “Scared to try and eat” “Don’t know what to eat”“Feel like I’d be better not eating”

Don’t worry I’m still eating but it’s been tough.

At least if nothing else MOC has been a huge and welcome distraction to how I’ve felt.

 

I’m already pretty low dairy because of being lactose intolerant

 

Not cutting back all because you need the equivalent of four slices of bread per day in your system if further tests are needed beyond the blood test. In short though, I have reduced gluten for some meals here and there over the past week and felt much better than I do now.

 

me too, don’t mind if it’s bad news, I’d rather just know if that makes sense….no fun living in limbo land which is where I am currently

 

Miserable is an understatement that’s for sure

 

Yeah I’ve pretty much been housebound - I wasn’t able to see family either at Christmas or earlier this month, haven’t seen friends for ages as there were too many unknowns and risks involved.

It was a case of “putting up” with symptoms that were one off over the years but the last month the symptoms were much worse and looking back, I’ve probably suffered for a good nearly 20 years (with ages 23 to nearly 35 being the worst).

 

The doctors haven’t yet….getting the test done was just me pushing for it and saying I’ve had enough of feeling this way.

 

It wasn’t until recently that a lot of niggly issues made sense hence why I hadn’t truly pushed for answers til now. Like, I’ve had unexplained iron deficiency anaemia years back that required hospitalisation, fatigue and brain fog that’s got consistently worse not better with CPAP treatment for Sleep Apnea, gastric issues that date back to surgery I had years ago that can’t be tied to food intolerances, the fact when I’ve been lower carb I’ve felt better so lots of one off isolated incidents. The straw that broke the camels back so to say was waking up twice during the night over the past few days having had “accidents” I was unaware of til hours later. I’ve suspected it but never truly figured the puzzle out