He's 'happily' placed in a rehab...

Discussion in 'Chatty Pad' started by cookingmylife, Jun 14, 2019.

  1. cookingmylife

    cookingmylife I just like to go fast and wear helmets

    Aug 1, 2012
    I should probably say it's more like he's accepting that this is what it is right now but is already chomping at the bit. That tells me he's improving! :giggle

    Dick was discharged from the hospital Wednesday which ended up being a loooong process with a few snafus, including my noticing on his discharge paperwork that some medications/pills were to be administered by mouth. No no no...everything must go in via the feeding tube with pills crushed and mixed with water. (Yes it is a p. in t. a but...) The change for that one sheet of paper had to be referred to the Hospitalist, signed off by him, taken to the printer and given to us. Yep, an hour. But in the end Dick was untethered from all his lines and in my car just to hit our local rush hour at 5:30.

    Rehab admission became a comedy of errors as it certainly seemed that all admission staff had gone home at 5 and none of the nurses or techs seemed to have an idea of who to tell that this man was here. Dick was put in a room (yes the private one we asked for) and then we waited and waited.... After a few trips out to the nurses station I finally found one who knew what to do as Dick's paperwork had been sitting on their desk for an hour. I did remind her that he didn't have any food since early afternoon and was to be on continuous feeding. That necessitates getting a pole to hang the food (which fortunately had been given to us by the Hospital !) and the key to the storeroom that had the pole was no where to be found. One nurse who released info like it was gold finally announced that she had the key. Sigh...a bit of a control issue??

    By 8:30 Dick had his food and a water drip though no meds had arrived which was a normal situation we were told. (eek!) Fortunately Dick had his pain patch which was good for another day so we said goodbye, with a lot of Oh well...shaking of heads. At points like this you just have to go with the flow and lose some of the 'smaller' battles and win the war.

    Yesterday we met the Doctor who seems very on the ball but occasionally said...I'll send that info to the nurse...with a bit of a raised eyebrow look. We get understood. Dick now has had two days with 4 different therapists daily, PT, Speech, Occupational, and another neither of can ever remember. That occupies his morning and the afternoon is given to rest or asking to be untethered from food and water so he can use the walker and walk or even go and sit outside which he's done. No PTs on weekends so I'll encourage his/our friends to visit!!

    The only forgetful thing I did today is after going out for lunch with a friend, (Indian Buffet!!) I gave my credit card to pay and then we both walked out neither signing the slip nor getting the card back. Sigh. So tonight back I go to get it. Such things are part of my chemo brain!
    But Dick is really happy to be able to finally sip a tiny spoon of water at a time and actually swallow it w/o choking. The speech therapist lessons are really working for him and he's doing them. <--Amazing! I think we both now have tentative hope for the future and the knowledge he did all he could so far. That's a wonderful feeling. xoxoxo to all
    bonnenuit, KarenB, KarenW and 7 others like this.
  2. AJK

    AJK But I don’t want to go among mad people!

    Apr 18, 2012
    Oh Maureen. I am amazed at the strength that you exude. Glad you were able to squeeze in some delectable Indian food!:clappy Keep going with that joy- it is working for you!:beat
  3. IntenseMagic

    IntenseMagic College was bad for my reputation

    Feb 28, 2012
    Glad he was finally able to get settled and that you both have a good outlook on things. You both continue to be in my thoughts and prayers :heartlub:heartlub
  4. Tree City

    Tree City Get a stepladder, I'm busy

    Sep 28, 2011
    Glad he's settled and it looks like things seem to be improving! So wonderful to read the speech therapy already is making a difference. I'll pray he continues to improve and to feel good!
  5. bellbird

    bellbird Pollywog

    Oct 10, 2010
    I've been thinking about you both a lot lately. So sorry the transition wasn't exactly smooth but I hope things continue to improve with all the therapies (& that you get your credit card back- good to hear you got some time out with a friend though - all in, it's sounding positive! )
  6. BevG

    BevG If I can't remember it, it didn't happen

    Dec 26, 2015
    Such great news overall! I hope and pray that he continues to improve and settle into his new place.
  7. wvsandy

    wvsandy I love ALL parts of the baby! No, really!

    Apr 15, 2011
    Hugs & continued prayers! So glad to hear that you both have hope. I know how frustrating this whole process can be. Thanks for the update.
  8. HeatherB

    HeatherB Ain't nothin wrong with a few dust bunnies!

    Jun 2, 2010
    Glad to hear he's getting settled in and that things are improving for him already! It's been such an ordeal for the two of you. You have such a good attitude for handling things!
  9. Dalis

    Dalis Jose Cuervo is NOT a good friend

    May 6, 2011
    Yay for small improvements! Control issues are problems everywhere!
  10. cfile

    cfile My bags are packed for Platform 9 3/4

    Sep 2, 2011
    Great to hear the progress.. continuous prayers and glad you can get rest while he is doing his therapy.. hugs and prayers for Dick and also for you!
  11. Nemla

    Nemla Stretching my skill set

    Apr 24, 2013
    One up on the scoreboard in your favour, I hope for many more for you.
  12. umyesh

    umyesh Swooning for warm bread & butter

    Jul 17, 2012
    So glad to hear he's making progress with sipping and not choking. Wishing you the very best as always.
  13. A-M

    A-M Not a lot of hustle in my hustle anymore

    May 3, 2016
    Maureen, thank you for keeping us up to date with everything.
    That is good news about the improvements... may it all improve for him.
  14. Cherylndesigns

    Cherylndesigns All glasses should be bigger than 1.5 oz

    Dec 15, 2017
    Thinking of you and Dick. Hugs
  15. jenn mccabe

    jenn mccabe She's OUR sunshine!

    Jan 5, 2013
    wow, they do not make it easy huh? happy to hear about small victories for Dick though. it all sounds so tiring - glad he gets some rest and down time to heal.
  16. Ferdy

    Ferdy No.More.Chaps.and. Leathers!

    Oct 21, 2009
    oh Maureen...this is so hard,I'm glad things are getting better...baby steps! keep you both in my thoughts!!
  17. Karen

    Karen Alarm off, brunch ON

    Jun 28, 2008
    That is great news Maureen! I'm glad you're keeping them all in line and there to advocate for Dick.
  18. mcurtt

    mcurtt give me all the paleo brownies

    Jan 2, 2015
    Glad to hear about Dick's improvement, even if it is small. Sounds like therapy is working. Thank you for keeping us informed.
  19. bcgal00

    bcgal00 Feeling lazy with my coffee and book

    Nov 18, 2010
    Thx for the update Maureen. I've been thinking about you. Glad he is in rehab and hopefully now things will go smoothly. He is so lucky to have you at his side. Take care of yourself and prayers and hugs to you both.
  20. cookingmylife

    cookingmylife I just like to go fast and wear helmets

    Aug 1, 2012
    Thank you all for your support. Today I had my meltdown as Dick feels that he will be discharged in a week. I just felt I couldn't handle that and truly need a couple days where I just sleep in and don't visit, make plans for his care etc. I just broke down when he kept talking about that and felt I just can't do it. At the point my mind just couldn't be in the same place I was when, at the hospital, when his discharge was imminent and the Care Coordinator suggested I go visit all the rehabs I was interested in. Like I had a free day or two??? I understood but at the same time I had to be in the hospital to catch at least half the doctor or hear what Dick heard from any one of them or what he thought he heard. For a time he had morphine, oxydocone and a fentanyl patch so I didn't always trust what he said.

    Most nearby rehabs must pay their nursing staff peanuts and it shows in the attitude. But, after a couple of crying spells, I pulled up my big girl pants and said I'd look into home care for the week before I leave and while I am gone in Canada. Dick has the occasional accident and so he's back in the Depends as well as having the catheter. Putting a full rubber sheet on his bed was something he refused while in the treatment stage but something I did while he as in the hospital. Good thing. I will be happy when he is off, god willing, the last of the pain meds - the patch - knowing that his mind will be clearer and also god willing he has no more pain.

    Each day seems to present a new challenge and I keep reminding myself that things are not happening TO me, they re happening FOR me and giving me a chance to grow. Sometimes I just grumble and say F*that! to myself but then laugh at my foolishness. Years ago, when I was 'between marriages' I had a few dates with a recent widower. I recall his huge dining room table just covered with piles of relative bills from x,y and z. Guess who has that table now even though the bills haven't started coming in yet. It's just various categories of important papers covering all current options in our lives. Oy vay, as they say... :dizzy
    KarenB and Karen like this.

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